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Ableism, Community Living and the Myth of Independence

February 27th, 2015

Recently, I’ve seen a trend that worries me. Social media disability support groups are commonly hosting conversation in which independence is trumpeted as an aspiration and fundamental element of human worth.   Independence is the necessary ingredient to 

The disability movement has always been fractured.  There are parents who seek safety and security in segregated settings, while others fervently defend
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Ableism, Community Living and the Myth of Independence

February 27th, 2015

Recently, I’ve seen a trend that worries me. Social media disability support groups are commonly hosting conversation in which independence is trumpeted as an aspiration and fundamental element of human worth.   Independence is the necessary ingredient to 

The disability movement has always been fractured.  There are parents who seek safety and security in segregated settings, while others fervently defend
read more

Preparing to Care From Afar During Spring Break Holiday

February 25th, 2015

There may be parents of children with disabilities who travel as a family during spring break, but I’ll leave that subject for another post. Today, I would like to talk about making preparations to care from afar when you leave on holiday and your loved one does not travel with you.  Spring break is an important time for many families…
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Sayings Caregivers Hate, Such As “Let me Know If There’s Anything I Can Do”

February 22nd, 2015

If you want something you have never had, you must be willing to do something you have never done

Fact: Caregivers need help. Fact: Many caregivers have trouble asking for help. Fact:  When friends and family say, “Let me know if there’s anything I can do”, caregivers stifle the urge to scream. There are so many things wrong with this…
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Do you have a Registered Disability Savings Plan (RDSP)? –Ottawa Community News

February 21st, 2015

The Registered Disability Savings Plan (RDSP) is a long-term savings plan to help Canadians with disabilities and their families save for the future of the person with the disability. Often these funds are referred to as “Matched Savings Plan” for the disabled. 1. Who is eligible for an RDSP? a. You must have a valid Social Insurance Number b. The…
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Why Some People Won’t Help and What You Should Do About It

February 3rd, 2015

Yesterday, I read an excellent blog post titled “Asking for Help” on the Caregiver Space.  The article is chock full of good ideas and practical advice.  It was the comments that got me thinking, though.  Many sounded like this: What if no one asks if they can help? That’s my problem….. I’m here 24/7, if someone would ask if
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Celebrating Royalty and Nobility in Ordinary Caregiving

January 24th, 2015

“So Brother Matthew locked the gate behind me, and I was enclosed in the four walls of my new freedom.” Thomas Merton
Caregivers like me know how the four walls of home can sometimes close in and feel like a prison.  How to find freedom, satisfaction, meaning and joy within those walls was the subject of my book, “The Four
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Celebrating Royalty and Nobility in Ordinary Caregiving

January 24th, 2015

“So Brother Matthew locked the gate behind me, and I was enclosed in the four walls of my new freedom.” Thomas Merton
Caregivers like me know how the four walls of home can sometimes close in and feel like a prison.  How to find freedom, satisfaction, meaning and joy within those walls was the subject of my book, “The Four
read more

Understanding the Needs of the Caregiver and Care Receiver

January 22nd, 2015

By Guest Blogger, Fay D. Wein

Introduction: According to a recent study headed by Susannah Fox, associate director of the Pew Research Center’s Internet and American Life project, Americans are living longer not only due to advances in medicine, but as a result of the excellent care that is being provided by adult caregivers upon their release from the
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Can We Teach Caregiving to the Masses? Should We?

January 11th, 2015

Here’s a question I’ve been pondering this week: can excellent caregiving be taught?  Imagine the perfect caregiver… someone who listens with their whole being, someone who enables the disabled with quiet dignity and humor, someone who puts their charge in the spotlight, while they retreat to the shadows.  Can these skills and talents be taught to our next…
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