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Advice for New Caregivers

July 22nd, 2014

Today’s guest post is by Derek Hobson, BA.  Derek is the editor for ConciergeCareAdvisors.com, a senior care referral agency. He developed a passion for elder care when he became the primary caregiver for his grandmother. Since then, he has sought to inspire fellow caregivers as “there is no success without hardship.” 

When I was 20 years old, my grandmother Continue reading


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Setting Roles, Boundaries and Limits in Mothering a Complex Child

July 19th, 2014

One day a few months ago, fellow disability Mom and writer Jennifer Johannesen sat down with me for a chat.  (I highly recommend Jennifer’s book and her blog- they are at the top of my favourites list.)  In a previously published portion… of our chat, I introduced Nicholas and our family life.
Here, I discuss the pain and joy Continue reading


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My Best Caregiving Tip

July 14th, 2014

After twenty-five years of intensive caregiving, the most important thing I’ve learned is that giving good care over time requires a team.  Trying to manage alone and without the help of others inevitably leads to exhaustion, depression, ill health and even family breakdown.  But with a coordinated ‘network of support’, it is possible to locate the possibility of a ‘good… Continue reading


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Making Friends With Solitude

July 10th, 2014

I used to hate being alone.  I remember as a teenager, aching for the phone to ring, rifling through my closet for something ‘cool’ to wear, wandering the halls of my university residence listening for signs of music and laughter.  I was restless and bored being by myself.
But not anymore.  My searching spirit was quieted by years of solitude… Continue reading


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No Saints Around Here (Book Review): Do I Hate It or Do I Love It?

July 7th, 2014

About 20 pages into Susan Allen Toth’s caregiving memoir, “No Saints Around Here”…, I decided I didn’t like the author.  Not one bit.  ”How can a wife sigh loudly in front of her Parkinson’s disease-suffering husband just because she can’t have a second cup of tea in the morning?!” I fumed.  I kept picking up this book, reading a Continue reading


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No Saints Around Here (Book Review): Do I Hate It or Do I Love It?

July 7th, 2014

About 20 pages into Susan Allen Toth’s caregiving memoir, “No Saints Around Here”…, I decided I didn’t like the author.  Not one bit.  ”How can a wife sigh loudly in front of her Parkinson’s disease-suffering husband just because she can’t have a second cup of tea in the morning?!” I fumed.  I kept picking up this book, reading a Continue reading


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Enabling Meaning and Purpose in the Lives of Our Loved Ones

July 1st, 2014

How can we help our loved ones experience meaning and purpose in their lives?  Does having a disability, getting older, or losing cognitive skills automatically exclude the possibility of purpose in life?

In my family, meaningful contribution is central to happiness.  I believe it is for most people.   …Our son Nicholas is 25 and mostly bed-ridden due Continue reading


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Enabling Meaning and Purpose in the Lives of Our Loved Ones

July 1st, 2014

How can we help our loved ones experience meaning and purpose in their lives?  Does having a disability, getting older, or losing cognitive skills automatically exclude the possibility of purpose in life?

In my family, meaningful contribution is central to happiness.  I believe it is for most people.   …Our son Nicholas is 25 and mostly bed-ridden due Continue reading


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Coming to Terms with Disability in My Family, Across Generations

June 27th, 2014

After my Dad passed away in 1975 following his third stroke, I was angry.  Really, really angry.  I would sit in church, look at Christ on the cross and fume, “why does everyone go on and on about YOUR suffering?!  That was NOTHING compared to what my Dad endured!”  All these years later, the anger has waned, but I still… Continue reading


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An Interview With Me About Caregiving and Writing About Family Life & Ideas

June 24th, 2014

Recently, I gave an interview to Kris Bone, a writer with the Puritan Magazine… (a Canadian literary journal).  Here’s his article about my book, “The Four Walls of My Freedom: Lessons I’ve Learned From a Life of Caregiving” (House of Anansi Press, 2014).  My book is available everywhere in Canada and for pre-order in the USA via all major booksellers.  Continue reading


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