The Caregivers’ Best Friend – TYZE
July 23rd, 2012
Before we got Tyze, I would leave notes for the carers in Nicholas’ room. We had a white board on the bedroom wall for important message such as medication changes. A medical chart with daily notes sat on the table beside Nick’s bed. Still, messages got missed. When people work only a couple of shifts a week, they tend to assume that nothing has changed since the last time they cared for Nick. And of course, Nicholas’ carers are his friends, so a friendly banter erupts when a new carer arrives. Nicholas, being non-speaking and not very interested in the fine points of his own care directives would much rather lead the conversation toward WWE wrestling or hockey than towards adjusting his seizure medication up or down. All those factors combine to sabotage the flow of important information.
Tyze is like a highly specialized and entirely private version of facebook, but with a lot more features. The invited members of Nick’s network are his care staff, the general practice physician and our immediate family. There is a calendar tab where medical appointments or fun events are entered. But there’s also a facility to list the need for wheelchair transport. Members of Nicholas’ Tyze network can sign up for a task such as arranging the transportation to an outing or organizing a social event. What is truly unique about Tyze is that it offers the opportunity to blend formal (paid caregivers, therapists, doctor) with informal (family, close friends) types of support. Recently, Nicholas had a rash on his face. I took a photo of it with my phone, sent the image to the doctor via Tyze and almost immediately, we had a treatment plan.